Sunday, December 21, 2014

It's Always Enough

It’s Always Enough

When I am faced with a decision to put my left sneaker on, then my right sneaker, then open the door to 20 degree weather, then take a few deep breaths and plunge into the icy wind as it pierces my lung tissue, and run, I usually choose to do it.




It’s come from years of craziness—crazy schedules, random symptoms, weather changes, life changes, food cravings…whatever comes my way I’ve had to adapt. It’s part of growing up—we all adapt, we grow up, and we change naturally.  Some people learn how to adapt well to change in their 20s, 30s, 40s, some not till their 70s or 80s.  I learned when I was two.
Like the decision to run, it’s sort of like adapt or die. Run, or lung infection—your choice.  That’s been my mentality every time I put the first sneaker on. 
But there are those days where (and runners you feel me) when that sneaker is giving you blisters, you ate too much almond butter and then downed some coffee, and you’re like “mm maybe not today.”  And what’s one day right? But see we all get in those slumps where the one day becomes two, and then it’s the weekend, its time to relax and then it’s Monday and you’ve skipped four days of working out. Not sure about you, but I’m looking at least a day off of school and possibly a strong antibiotic by Tuesday. We need to be consistent. That’s the beauty of this disease—it keeps you in awesome shape because you’re forced to workout!
But from all this regimen and consistency and “never saying never” is something I think we as CFers have lost—the ability to say “it’s enough.” 

We are enough. 

Our runs, hikes, swims, jump rope, kayaking, surfing, skateboarding, bike riding, weight lifting, whatever you do that sets your lungs on fire--- all are enough.
Some of the most successful people in the world have to look themselves in the mirror once in a blue moon and say “I am enough” or else their success would be lost to worry and self-doubt.  Similar to success in the work world, we as the CF population have to use the same tactics in the health world.



There are times when I am not this optimistic.  It would be distasteful of me to give you this false impression of a 24/7 bubbly blonde whose all like “oo my god life is positivity!”  There are times where I would come down on myself so hard for the most laughable things—like I didn’t run an extra three minutes during a run because my stomach hurt, so I started crying.  Sobbing, actually.  Crying because I knew I could do it, but I was convinced I was too weak mentally to finish the run. I actually took the next day off because I felt like I wouldn’t finish that run either. Total drama queen mode;)
The key point I want to hit home is that if anyone should believe that what they are doing, it’s you.  You do things every day to make sure you stay alive.  You eat, you sleep, you socialize, you work or go to school, you exercise, you take your vitamins…everything to keep you breathing and beating for the one life you get to have every day. And CFers, especially younger ones—news for you—your schedules going to be different from all your friends for the rest of your life.  Sure the treatments get a little tedious, but you’re going to be the spectacular one who exercises, with all your endorphins and happy juice floating around your bloodstream, loving how your hair looks that day, and smiling at everyone all the time...(disclaimer: don’t smile at the same person for too long, it will creep them out).  


You are born a fighter at heart—a gift you will always have. 
The best part about that fighter in you is that you can spread that spirit to other people.  I have had many people remind me throughout life that I “inspire them” or “keep them motivated” to conquer whatever hardship they are going through.  I never really understood why until the end of high school when I was hospitalized, when I looked around at patients around me and I was inspired to keep going, keep conquering each day—it’s like I was fighting for myself and them.  I wanted to get better so I could continue to fight for all the little CFers in the rooms next to me, the ones that needed a new pair of lungs, a new type of medicine, or a few more prayers to keep them going…I needed to get out of there so I could help them like they helped me.  Other CF patients are a huge reason why I started this blog—not only to spread awareness, but to continue to motivate others with CF to realize that they are enough and their fight is the strongest type there is.  
The one thing I can guarantee you, CFers, is that when you look back on your life one day, you will not regret a single thing you did.  You are the ones who will leave a mark, the true fighters, and I couldn’t be prouder to have you in my boxing ring. 

Do not forget you are always enough—breathing and beating is what you do and how you choose to do it is up to you.  The fight may be endless, but you cannot give up.  And don’t worry..you wontJ That desire to live is part of your genetic code, and you are stuck with it! 
I believe in you, fellow champions, and I will not stop fighting if I can fight alongside you.  So, if you could pass me a Christmas present, please pledge that you will breathe and beat in some way on Christmas day (or if you celebrate another holiday, do something on that day!:)  Go exercise, do your treatments, eat the right foods, even take a nap…do something that improves your health and keeps you fighting. Post it below if you want to--Just promise me that you’ll do something!
You are always enough and I will never stop believing in you.

Breathing&Beating,

Meghan













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3 comments:

  1. Hi..my son diagnosed cf when he just 1 yr...im worried enough...i found your blog very helpful and motivated me....thanks a lott

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    1. Hi!...I keep trying to post on here and googles being a pain, so if you see 3-4 replies its computer issues!
      Thank you for this message I really appreciate it--parents are such an amazing piece to beating this disease--from the day we're diagnosed, our fight is your fight-- I wish I could thank every parent in the world with children with CF, you all are my heroes! I hope your son is healthy and well, and if you have any questions feel free to email.
      Happy & Healthy New Year to you and your family!
      Meghan

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  2. Thanks Meghan for the motivating blog!

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